Monday, 11 August 2025

Spina Bifida – Easy Read Questions and Answers

 



1. What is spina bifida? 🧠
Spina bifida is when a baby’s spine does not form properly before birth.
It can leave a gap in the bones of the spine.


2. What causes spina bifida? 🥦
We don’t know the exact cause.
It may be linked to:

  • Low folic acid in pregnancy

  • Family history

  • Some medicines or illnesses in the mother


3. What are the symptoms? 🩼
Symptoms can include:

  • Weak legs or no movement

  • Problems with bladder or bowels

  • Curved spine (scoliosis)

  • Fluid on the brain (hydrocephalus)


4. What is spina bifida occulta? 🔍
The mildest type of spina bifida.
Often has no symptoms and is found by an X-ray or scan.


5. How is it treated? 🏥
Treatment can include:

  • Surgery

  • Physiotherapy

  • Medicines

  • Special equipment to help with walking or moving


6. Can adults have spina bifida? 👩‍🦽
Yes. Many people are born with it and live into adulthood.


7. Common symptoms 📋

  • Weakness in legs

  • Trouble controlling bladder or bowels

  • Fluid on the brain


8. Causes ⚠️

  • Low folic acid in pregnancy

  • Family history

  • Some medicines

  • Some health problems in pregnancy


9. Treatments for adults 🧑‍⚕️

  • Physiotherapy

  • Occupational therapy

  • Continence (toilet) support

  • Pain relief

  • Surgery if needed


10. Can it be prevented? 🌿
Sometimes.
Taking folic acid before and during pregnancy lowers the risk.


11. How is it diagnosed? 🩻

  • Scan in pregnancy

  • Blood tests

  • Physical checks after birth


12. Long-term effects

  • Trouble walking

  • Toilet problems

  • Learning difficulties

  • Need for ongoing care


13. Can it be cured?
No.
But treatment can help people live well.


14. Risk factors 📊

  • Low folic acid

  • Family history

  • Mother’s health problems

  • Being overweight before pregnancy


15. Complications 🛑

  • Infections

  • Sores from sitting too long

  • Fluid on the brain

  • Emotional challenges


16. Challenges for adults 💬

  • Mobility problems

  • Pain

  • Work barriers

  • Lifelong health care


17. How common is it? 🔢
In the U.S., about 1 in 2,700 babies are born with spina bifida.


18. Is it genetic? 🧬
Not always, but genes can increase risk.


19. Can it be fatal? ⚰️
Severe cases can be dangerous without treatment.


20. Can it be found before birth? 🤰
Yes — with pregnancy scans and tests.


21. Specialists who treat it 🩺

  • Brain and spine surgeons (neurosurgeons)

  • Bone doctors (orthopaedic surgeons)

  • Bladder doctors (urologists)

  • Physiotherapists

  • Occupational therapists


22. Treatments for children 👶

  • Surgery after birth

  • Physiotherapy

  • Mobility aids

  • Extra help in school


23. Always noticeable at birth? 👀
No.
Mild types may only be found in later life.


24. Outlook 🌈
Many people live full lives with the right support.


25. Can it cause paralysis? 🦽
Yes, sometimes below the area of the spine affected.


26. Helpful equipment 🛠️

  • Wheelchairs

  • Crutches

  • Braces

  • Standing frames

  • Urinary catheters


27. Types of spina bifida 📚

  • Occulta – mild, hidden

  • Meningocele – fluid sac, spinal cord not inside

  • Myelomeningocele – most severe, spinal cord in sac


28. Can it cause toilet problems? 🚽
Yes. Nerve damage often affects bladder and bowel control.

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