Slide 2 – Why This Matters
People with learning disabilities often:
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Have more health problems
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Have mental health needs
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Have trouble getting care
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Slide 3 – Global Perspective
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WHO shows health inequalities worldwide
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UK: NHS provides free healthcare
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USA: mix of insurance, Medicare, Medicaid, charities
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Slide 4 – Challenges in UK Healthcare
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Waiting lists
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Communication problems
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Lack of GP training
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Symptoms sometimes ignored
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Real-life example: Epilepsy – high-dose medication made me “like a zombly”
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Slide 5 – Historical Lessons
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Medications like phenobarbitone affected behaviour and learning
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Families often noticed side effects first
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Listen to carers and patients
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Slide 6 – Research Evidence
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LeDeR: people with learning disabilities die younger
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Many have hidden health problems
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Annual health checks help detect these issues
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Slide 7 – Diagnostic Overshadowing
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Symptoms wrongly blamed on disability
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Pain, distress, illness may be missed
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Slide 8 – GP and Healthcare Training
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75% of UK GPs had little learning disability training
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Need for skills in:
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Behavioural issues
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Psychiatric conditions
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Complex medical needs
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Slide 9 – Annual Health Checks
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Find unknown health problems
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Include:
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Physical health
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Mental health
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Medication review
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Communication needs
[Symbol: checklist + health cross]
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Slide 10 – Reasonable Adjustments
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Longer appointments
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Easy Read materials
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Carer involvement
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Tailored monitoring
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Slide 11 – Mental Health Considerations
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Anxiety, depression, sensory issues
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Person-centred care is important
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Slide 12 – Lived Experience
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Epilepsy story: high-dose phenobarbitone as a child
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Effects: sleepiness, slow alertness, “zombly”
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Lesson: listen to patients and carers
[Symbol: family + pill + alert icon]
Slide 13 – “Treat Me Well” Campaign
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Mencap campaign
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Encourages reasonable adjustments and respect
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Supports carers and patients to be heard
[Symbol: megaphone + heart + people]
Slide 14 – Barriers Across Countries
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UK, USA, and global barriers:
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Lack of training
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Poor communication
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System pressures
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Slide 15 – Charities & Philanthropy
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US: donations support disability and healthcare programs
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UK: advocacy and campaigning still essential
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System responsibility cannot be replaced by charity
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Slide 16 – Reflection Exercise
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Ask: “If this was your child, how would you want them treated?”
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Discuss: communication, respect, patience
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Slide 17 – Practical Tips for Professionals
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Take symptoms seriously
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Avoid assumptions about behaviour
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Listen to carers
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Provide accessible information
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Make reasonable adjustments
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Slide 18 – Resources
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LeDeR Programme
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CIRC GP Health Check Guide
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Mencap Treat Me Well
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NCBI / PMC research article
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Easy Read materials for patients
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Slide 19 – Key Messages
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Equal healthcare for all
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Dignity and respect
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Small changes can save lives
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Awareness + training + policy = impact
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Slide 20 – Reflection Questions / Quiz
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How confident are you in recognising health needs?
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Do you make assumptions about behaviour?
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How can you make healthcare more accessible?
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Optional: 5–10 short multiple-choice questions based on content
[Symbol: question mark + chat bubble + thinking face]
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